Monday, May 8, 2017

Going to the Bathroom with Your Phone in Your Hand

So yeah, this whole cancer diagnosis is life-changing. In a million different ways. Here's one of the more amusing changes I've made since getting the news.

When you're expecting an important phone call, you want to be available when it comes through.

When you've just been diagnosed at fifty with cancer, every single phone call is an important one that you don't want to miss. Radiology is calling to schedule your biopsy. Your doctor is calling to discuss your diagnosis. Oncology is calling to discuss your chemo appointment. They're all important. And if you miss a call, good luck trying to call back. It's a one-way system (at least in Kaiser). They can get hold of you any time they want. You canNOT get hold of them without winding your way through an operator who connects you to a department which demands you enter your medical number, birthdate and social security number into your phone before it will connect you with a secretary who will see if the person you want to speak with is available. It takes a herculean effort to successfully return a call.

So here's my solution as of late: If I am expecting a call, I simply walk around with two phones in my hand. Everywhere I go. Even to the bathroom.

I know. Sorry about that visual. And I do always wash my hands so no worries about using the phone after me.

On the plus side, I never have to search for the phone! I knew there had to be an upside to all this shit!


Welcome to Memorial Sloan Kettering Cancer Center

"Welcome to Memorial Sloan Kettering Cancer Center. How can I help you?"

Those were the words that a very kind sounding woman three-thousand miles away said to me when I dialed the number I had been given by a wonderful cousin who wanted to point me in the best possible direction with my new diagnosis.

How surreal.

I did not expect to be dialing that number or hearing those words at this point in my life. But there I was.

I would really like to write a long, eloquent piece about the shock of all of this. But I'm not sure eloquence is in my bag of tricks currently. I'll get there. But right now I'm still trying to adjust to the idea that I actually called Memorial Sloan Kettering Cancer Center.

More to come.

Hey Here's A (Great) Idea

I come up with all sorts of ideas. Some are ways to fix things. Some are ways to start things. Some are just invention ideas. Most of them are decent ideas. Perhaps not great, sometimes not necessary, and almost always they are never actually going to happen.

But this idea... this is a good one. Maybe even a great one. It's necessary, and it should happen.

Say you get a call one day from your doctor, and he tells you that you have cancer. BOOM!
That's what that feels like. Your whole world explodes inside your head in one tiny second.
You have a million questions but you can't ask any of them because you are mentally paralyzed and feel like you might throw up in between your heaving sobs. Before you know it you've hung up the phone. The conversation that just changed your whole perspective has ended and you are left, head in your hands, heart thumping wildly, legs too weak to get up, eyes red, cheeks wet, mind dazed and confused.

Here's where my idea comes in.

The next thing that should happen is that your phone rings again, and it should be someone from your medical plan, a designated representative assigned to you, calling to talk to you, to answer your questions regarding your diagnosis--all the ones that you now have but you can't reach your doctor because doctors don't have direct lines anymore and there's no way you're getting through the medical assistant to speak directly with that doctor that just gave you your diagnosis because for your to actually speak directly to your doctor you need a phone appointment and those are now being scheduled two weeks out because doctors are, you know, busy.

No one should ever receive a scary diagnosis and then be left with no one to answer questions or no one to talk to. That second phone call could make all the difference in the world.

Two phone calls means you now know what's going to happen next.
Two phone calls means you now have the phone numbers you need to call in the next few days.
Two phone calls means you now know a general timeline of what's ahead.
Two phone calls means you now know that two days is a good turnaround time for radiology to return your call and you won't need to spend hours on the phone trying to talk to them sooner.
Two phone calls means you now know which doctor is in charge of you.
Two phone calls means you're less likely to start googling anything.
Two phone calls means you now know there's someone to call if you need help.
Two phone calls might make the difference in being able to get to sleep that night.

No matter how great your health plan is, doctors are not readily available to talk exactly when you think you might go crazy out of fear and lack of information. Email is great, but again not when you're insanely scared and need an immediate response.

You need a voice to speak with, and ideally you need a body, someone to speak to in person so you can slow down and think and listen and respond in real time. You need someone who knows your case, who knows the system and can help you navigate it. You need a personal advocate.

That's my (great) idea. Please feel free to run with it, Kaiser.


Sunday, March 19, 2017

Am I a Cheater or a Genius? (subtitle: Jefferson v. Hamilton)

I hate even asking that question. But there are arguments both ways.

I have taken to attempting some of the puzzles in the back of the New York Times Sunday Magazine each week. Most of them I don't even give a second glance because I can just tell by looking that it ain't gonna happen (every puzzle involving numbers). However there is one puzzle, innocuously title "Spelling Bee", that draws me in every week.

It's a circle. Inside the circle, arranged like the numbers on a clock, are six letters. Inside that circle of letters is a hexagon shape with just one letter inside of it. The idea is to use any of the letters in the outer ring (as many times as you need) as well as the letter in the center to spell as many words as you can. So to recap: You MUST use the letter in the center in each word; the letters in the outer ring are there for you to use, or not use, as many or as few times as you'd like in each word. Oh, and each word has to be at least five letters in length.

So try it, although since I have no idea how to put letters in a circle you're going to have to either make due with my representation below or draw this out yourself if you want the actual graphic.

                                                       E

                                         Y           M         I

                                         X                       R
                                                       T

You can (kind of?) see the idea here. Let me help you some more. You could use the word "timer", because it uses the "M" in the middle, as well as any other letters on the outside. You could use the word "trimmer" for the same reason. You could not use the word "texter" because it does not use the "M". Get it? Go ahead. Give it a go. You get one point for each word (proper names and hyphenated words are not allowed), and three points for a word that uses all seven letters of the puzzle.

Now be honest. How long did you spend trying to find words before you came back to reading the rest of this? It's kind of addicting isn't it?

I've been trying these puzzles each week for months now. Just in case you aren't frustrated enough, they put a rating system for each puzzle. The puzzle above is rated as follows:
7=good; 12=excellent; 17=genius.

I made it to "good" all by myself. But then...

I had a few words which I wasn't quite sure were actual words, so I went to my computer and clicked on the dictionary program on my Mac. The first word I wanted to look up was "mirer"--as in someone who gets mired down. It turns out that though "mirer" is not a word, "mirex" is, in fact a word. Not that I knew that. But I found out because as I entered in each letter of my word in question, word possibilities started popping up in a list.

M
I
R (mirage, mirror, mirth...)
E (mire, mirex)

And there you go. Mirer not a word. Mirex a word. That I did not know until just then.

I wrote it down and gave myself a point. Am I a cheater?

And if you're being nice enough to give me the benefit of the doubt at this point because I came across this technique accidentally, how about if, now that I knew I could do this, I started just typing in the letters from the puzzle to see what would come up?
Yes, I did that.
And I got more points. (trimeter, rimier and mitey are all legitimate words and now I even know what they mean!)

I am now, according to the rating system for this puzzle, a genius. A GENIUS I say!

But am I? I consulted the instructions for clarity. The directions simply ask how many words you can spell using the given letters. They do not specifically allow using any kind of aids in this quest. They don't specifically prohibit it, either.

So the bigger question, I guess, is how to interpret the instructions, as a strict constructionist (you can only do what is specifically articulated in the document) or a loose constructionist (it is not prohibited if the document does not specifically prohibit it)? Thomas Jefferson or Alexander Hamilton?

I am, apparently (and to no one who knows me would this come as a surprise) a loose constructionist, and as such I am, at least for today, declaring myself a genius :)



Monday, March 6, 2017

General Jumbliness and Discombobulation

Is anyone else out there just plain exasperated?

This White House is leaving me breathless with its constant stream of conspiracy theories, illegal maneuvers, flat-out lies and baseless accusations.

Not that I want him to do what he promised to do (I did not vote for him), but wasn't his big draw with his crowd the fact that, according to him, he and ONLY HE could get done what people wanted done? He was going to repeal Obamacare on DAY 1 (it turns out he had, and I quote, "no idea how complicated healthcare is!" Seriously?). He's going to build a wall and Mexico is going to pay for it (no indication as of yet that Mexico will embrace that idea, so if there's a wall then US taxpayers will foot that bill). Jobs. Jobs. Jobs. Trump was going to bring back manufacturing plants and coal plants and thousands upon thousands of jobs on DAY 1. We do seem well on our way to backing out of trade agreements. Perhaps that will bring back some jobs. Not thousands upon thousands. And I'm not sure whether Trump ever addressed what is likely to happen to the price of consumer goods once those trade agreements are broken. The devil's in the details, and Trump provided preciously few of those in his speeches. He's more of a grand, sweeping statements kind of guy. ISIS--I believe Trump declared that he would convene his generals and they would have to submit a plan to defeat ISIS within 30 days. Anyone heard of anything happening in that arena? Anything at all? Do we have that plan yet? And crime. Didn't he say that he would clean up crime in the inner cities on DAY 1? And shouldn't the VA be fixed by now?

DAY 1 was never going to be what Trump said it was going to be. That should have been people's first clue that perhaps nothing else was going to go as planned.

And things have definitely not gone as anticipated.

We've had a categorically unsuccessful special forces raid in which one soldier was killed, though Trump deemed the operation a huge success from start to finish (how he could lose a man and still declare 100% success on the mission is beyond me, and seems disrespectful to all military families). He's had one senior official resign in disgrace over his lies/Russia connections, and one has had to recuse himself from all things Russia at this point due to his own lies to Congress during his confirmation hearings. He's accused three million people of voting illegally, President Obama of wiretapping Trump Tower, President Obama of orchestrating White House leaks, and the Democrats of obstructing his every whim. I'm not sure if he's noticed, but the Democrats do not have the numbers currently to obstruct anything. Literally. Whatever's not happening is either on Trump himself or on the Republicans.

You don't have a full cabinet? Have your cabinet nominees submitted the required forms for confirmation hearings? No? Then that's on them. There's a process in place for a reason.

Not a lot has gotten done so far. Thankfully. Because what has made it through is thoroughly alarming. Pollution regulations have been rolled back. By Executive Order. The EPA is on lockdown and their website being scrubbed of environmental date regarding climate change. Financial regulations have been rolled back. By Executive Order. There have now been TWO Muslim bans put forward. By Executive Order.

History has also been rewritten by Secretary of Education Betsy DeVos. Did you know that Historically Black Colleges and Universities began because black students were not satisfied with the level of education they were receiving? Take that in for a moment. That's Ms. DeVos's version of the genesis of HBCU's.

So exasperated. Yes. I have no idea what's going on with my government. I'm not really sure my government knows what's going on with my government. Yesterday Senator Rand Paul was pushing his copy machine all over Capitol Hill in search of the new ACA bill. He was not allowed to see it. It's under lock and key, apparently. Another fact to take in: a sitting US Senator is being actively prohibited form seeing the healthcare reform bill being put forward by his own party. WTF?

It feels good to get this all out. It feels a little jumbled, but I think that's because that's how I'm feeling these days. This is not only disconcerting, it's discombobulating.

Here's how I see this in a nutshell:

Trump and his cohorts are raging drunk with power.

At some point soon, I would like the adults in the room to announce their presence, take people's car keys, and bring this raucous kegger back under control.


Friday, January 27, 2017

The Breaking Point

What is the breaking point, the tipping point, for good, decent Republicans to stand up and declare that Trump is not a rational, safe leader for our great nation and start the process of removing him from office?

I didn't love George W. Bush. I disagreed with many of his positions and an even greater number of his actions. But I never once doubted that he was a capable leader, making informed choices. I never once doubted that he was acting in what he thought was the truly best interests of the United States.

I have yet to see evidence that our new President is a capable leader making informed choices. And since he will not release his interests and tax returns I have no idea if he is acting in the best interests of the United States or himself.

Donald Trump tweeted this morning that he is looking forward to seeing the "results" from a voter fraud app that he seems certain is going to prove his assertion that three to five million illegal aliens voted fraudulently. The app developer has already proclaimed that he has the evidence to prove these allegations, but in multiple interviews he simultaneously says he hasn't put all the data together yet to see the results. Yet he is certain of the outcome.

That's a big, giant red flag--when you're certain of your results without the actual data to back them up. It loudly screams that you're manipulating your data to your intended outcome instead of allowing the data to determine the outcome.

So back to my initial question. When this guy releases his "findings", if he won't release the data to back it up (or if the data is proven to be false or falsely interpreted), will Trump cling to the findings anyway (if they support his allegations of voter fraud), and will this be a tipping point for lawmakers? When the President of the United States of America boldly declares that proven lies are in fact truth (alternate facts as his campaign is fond of saying), will that be enough cause for our elected representatives on both sides of the aisle to say enough is enough?

We need leaders who are unafraid to speak truth to power. Right now, President Trump holds all the power. That is not how our government is designed.

Assert your Constitutionally-established power, Senators and Representatives. Check his power.

Don't wait for the balance to tip so far that it can't right itself.

Deep Breathing

I'm going to get very good at yoga over the next four years. I'm going to power my way through physical therapy so that I can run again.

Deep breathing. Calm, relaxing mantras. Miles of quiet footfalls. Whatever it takes to reduce the stress that our newly elected leader is generating on what feels like an hourly basis.

What the hell is going on? What have we, as a nation, done? And what are we, as a nation, going to do to stop this madness?

We currently have a leader who does not do anything without a camera present. Every action, big and small, is touted as the best thing that's ever been done. Which to me, seems to diminish the impact of actual great things that might be done. And it causes me to ponder, Is the President able to distinguish the magnitudes of the various actions he is taking, or in his mind are they all the biggest and best? Is he paying attention to not just what he's signing but also to what the ramifications will be? Or are they all just photo opps?

After the election, the left was criticized for "taking Trump literally but not seriously," and the people who voted for him opined that they take him "seriously but not literally."

It turns out, as evidenced by the first five days in office, that everyone should have taken him both literally and seriously. He IS going to stop Muslim refugees from coming into the country and he IS going to actually build a wall on the US/Mexican border. He says he IS going to break NAFTA. He IS repealing healthcare without having an alternative plan in place. He has scrubbed the White House website of all references to climate change and has ordered the EPA to remove all references to climate change from its website. Let me repeat that. He has ordered the ENVIRONMENTAL PROTECTION AGENCY to remove links to research and findings regarding climate change. He is reinstating CIA black sites, which is a first step toward reinstating torture. He has muzzled the NIH, the Department of the Interior, and the EPA, prohibiting them from communicating with the press without first clearing it with the White House.

This is just the first five days.

And all this while he is still doubling down, publicly and contentiously and without any evidence that he is willing to provide to the press or public, on his belief that he lost the popular vote due to outlandish and widespread illegal voter fraud.

He's overly concerned with photos showing his inaugural turnout was not as good as Obama's first inauguration. Seriously overly concerned. It's taking up his time and thought process.

Breathe. Breathe again.

And in between breathing we all need to get up and do something to counteract this madness. Not just once. Again and again and again.

And again.

As if our nation depends on it, and depends on us.

Because it does.